Wow.. what a weekend and first round of chemo. First off I’d like to take a second to thank everyone again for the thoughts, prayers, love, and support you have given my family and me as I embark on this incredible journey God placed before me.
Now about my first treatment… man did it fly by. All last week my anxiety was building and my nerves were all over the place. I was not sure at all what to expect. I had gotten in contact with some people around my age that also have Ewings or have had Ewings and asked all the questions I could think of but even with that I still felt like I was not going to be ready. Thursday night when I went to sleep I said a quick prayer asking God to relieve my stress and just help me let go of my worries. He, of course, did just that. I was able to sleep almost all night Thursday night and woke up ready to go. I was no longer in fear and my worries seemed to just disappear.
We had to be at the hospital at 6:50 Friday morning and I was ready to go! They wheeled me back around 8:15 to put my medport in and of course, the conscious sedation did not work for me again. I was AWAKE through the WHOLE procedure. I think my radiologist that was installing the port was in shock with all the questions I had and how interested in everything he was doing. I think he has convinced me AGAIN that I either need to be a nurse or something in the medical field. The procedure took about 2 hours in total – then the waiting game began again. The hospital was overflowing with patients so we had to wait until they had a spot for me on the pediatric floor. Around 3:30 we got to my room and they continued to pump fluids into me. I started my first chemo at 6:30pm and finished my last one at 9:30 that night. Friday night I did not sleep the best because of nausea and being hooked to iv’s through a needle in my chest.
The nurses and doctors are wonderful and thank goodness we found some meds that helped with nausea. As of right now I have not thrown up!! For those of you who do not know me well – I am terrified of throwing up! I’ve been fortunate ( and so have my parents) to only have had a stomach virus twice in my 19 years!!
This treatment was a two-day regimen. The second chemo is given 24 hours after the start of the first one. I am required to stay hooked up to fluids to prevent any damage to my bladder during my entire hospital stay. The drugs I got this round can cause bladder and heart damage so there is extra medicine I receive my treatments to hopefully prevent that damage. So I got my second treatment about 7:30 Saturday night and since it was late and I had been nauseous I didn’t get to leave the hospital until noon Easter Sunday.
A special thank you to all my visitors I had. Kaitlyn Carawan and Austin for sitting with me all day as I slept and had not much to say. The Dugie family for my amazing large stuffed animal duck. My 2 amazing best friends Dallas and Kaci for my beautiful flower arrangements and Mr. Flint and the Kennedy family for my edible arrangement. The Savages and Mercedes for coming to say hi. I love yall all so much and so bless to have yall in my life.
“She is Clothed in Strength and Dignity and she Laughs without Fear of the Future!”
P.S. sorry a little later than expected. I was kind of low on energy!