What a Fast Three Days

I was planning to do a big post at the then end of this week but so much has already happened in these first three days I just could not wait.  Last week when we were going through all the drama with trying to get into MD Anderson mom went ahead and scheduled an appointment with an oncologist in San Antonio just in case my appointment got dropped.

Monday, March 7th we met with Dr. Sugalski and Dr. Longavin at San Antonio University Hospital. They are both pediatric oncologist Sugalski specializes in sarcoma / bone tumors and Longavin specializes in leukemia and other blood diseases. Both were amazing to meet with. Dr. Sugalski sat in the room with my family and me for over three hours and explained the “protocol” for treating Ewing Sarcoma. He explained to us that it will be 3 months for chemo ( with a lot of inpatient treatment), surgery to remove the tumor then another 6 months of chemo. We went into this appointment without knowing a lot about what the treatment would be like. We knew a little about the time frame but not about the hospital stays and other problems that would / could follow this treatment.

Today March 9th we made our way to Houston to meet with the surgeon Dr. Valeree Lewis, that will do the surgery on my leg. My family and I were given four options but the doctor recommended three to choose from.  The first option was amputation (which is not at all what I had in mind or what I am planning to do). Option number two is something called rotationplasty. This procedure is very interesting to me and right now is my top choice. It will allow me to get back into high impact activities and do everything I do today ( I still have quite a bit of thinking to do but from what I learned today I feel like this would be my best bet) Lastly was limb salvaging. When we went into this appointment this was the only option we had learned about so I had my mind set for that. I soon learned it was not exactly what I had in mind. This procedure is wonderful but with how active I am I do not feel that it will be a fit for me. I will be very limited in my activities and at a much higher risk for infection.

Like I said I still have a lot of decisions to make and thank goodness I have a little bit of time to do so. Tomorrow March 10th we will meet with the pediatric oncologist Dr. Herzog here at MD Anderson. Our plan is to see what other options I have and if there are any different things they do here with the treatment versus San Antonio. Also if she will be willing to work with Dr. Sugalski that way I will be closer to home and my college buddies in Seguin and my best friend Dallas at UTSA.

These next couple weeks I ask if y’all could help pray for guidance. Prayers that God will lead me to the right decision on my leg, prayers that whichever doctor we choose if we have to that it will be the right fit. I know God has a plan and I am just so ready to see what he has in mind.

Proverbs 3:5-8

“Trust in the Lord with all your heart and lean not on your understanding; in all your ways submit to him, and he will make your paths straight. Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones.”

 

Much Love

Jillian K

33 Comments

  1. Lisa Franks

    Continued Prayers for u during this journey. God has a BEAUTIFUL & AMAZING plan for u…. Everything happens for a reason. I know you will get through this, Jillian. You have the World routing for u. Xoxo
    Auntie Lisa

  2. Carla

    Praying for guidance. God will place the right people in your path. I know you WILL beat this. Attitude is so much of the battle. Stay positive and steadfast in your faith. Thanks for posting!

  3. Melanie

    You just amaze me with your calm words. I enjoy reading your updates. Stay strong & carry your faith you got this.

  4. Donna

    Jill i just want you to know you are a amazing young lady ,you and your family are in my prayers daily.I am glad you like Dr.Lewis but no matter what we are there for whatever you,your mom,your dad and even Trent needs all you have to do is call.We Love youll Donna & Joe

  5. Mary Levien

    Prayers for you, your family and the doctors handling your case!! God will guide you in your decisions❤️

  6. Blake Hartzog

    Praying for you Jillian! You are one amazingly strong and brave girl, not to mention very determined. You are determined to beat this and make the best of it and you will!!!

  7. Bryan Rogers

    Lord, I pray for Jillian and her family. I pray that you give her guidance to make the best decision for her, and for the calling you have on her life.

    I thank you for your servant, and how she has become an inspiration to many, including her parents and grandparents…as well as me. I pray that you continue to use her for your glory and that she may be blessed by your Spirit and the strength that can only come from you.

    I ask all these things in the name of Jesus, by the power of the Holy Spirit, to the Glory of God the father. Amen!

  8. Kelly Jo Osina

    Lifting you up in prayer!! God is Good all the time and he will guide your path.

    Your sister in Christ,
    Kelly Jo Crisp Osina

  9. Tim Rogers

    Thank you for your courageous attitude and tremendous approach to this situation. We pray God’s guidance and providence upon you and those caring for you. You have lifted us all.

  10. Kelli Barnick

    So so glad you have met/meeting Oncologists from both institutions. Smart move! Will pray for you, your family, and your doctors until you are Cancer Free sweet girl!❤️

  11. Ralph Kurz

    Jillian, you are most certainly a beautiful person both inside and out. When some one announces that you have the “C” word it can definitely be a scary situation especially with those cancers that have shown to be a bit more difficult to control than others. If I can reach out to you with one thing it would be to truly give it over to God and don’t hold on to even a smidgen of it. Though I believe that He gives us the power to work our way out of jams, your trust in His will for you is the only means by which you can find PEACE and understanding with your current situation. Never give up but acknowledge the fact that we as humans can’t possibly know or understand his plan for us as well as how it might effect others for the glory of God. “Can all your worries add a single moment to your life” (Matt 6:27). Know that God walks with you every step of your journey extending his grace to you all the while. Jillian, I love you just as all those whose lives you have touched and God loves you. If I can ever be of any help to you I am only a call away. Your brother in Christ, Ralph

  12. sharon anderson

    Ms. Awesome, such wise words from one so young! You could not have chosen a more appropriate scripture quote although for many it’s easier said than done. We often wish God’s will were a little more in line with our own. But as He reminds us, “for those who love God, ALL things work together for good.” (Romans 8:28) You and your family are in my prayers daily.

  13. sandra lemos

    Jillian, you definitely are on the right path! God will lead you in making the right choices, accepting them will require plenty of faith. In my eyes you will always be that beautiful free spirit that I remember from Miss Melissa’s dance class. I will keep you in my prayers….

  14. A. Susan

    The Proverbs scripture is a good motto for u & everyone.
    U r a fighter & a follow-through person. I feel n my heart, even though it’s presently incredulously hard for u, you’ll be victorious & be led to great things as u help others & have a rich amazing life. So many r praying for you & with you.
    Ur smile is n our hearts.

  15. MissyG

    Praying for you, Jillian. Lean into Him. Perfect verse for this fight! Health for your body and nourishment for your bones! Peace and Love from the Leyendecker/Grantham folks.

  16. Mandi Leon

    I love this blog site, Jill! I am so proud of you. You are so inspiring and loved by so many! Keeping you and your amazing family in my prayers. Love you lots <3 Mandi

  17. Maxx

    Norma Jean and I will surely pray for your quick recovery, Jillian, so you can come back to New Braunfels and do Schlitterbahn once again. You are a brave soul and we know you will come out of this in great shape.

    Cheers,
    Maxx & Norma Jean

  18. Page Hall

    Prayers to you and to your family. I have the utmost respect and like your mom so much. She is a wonderful person and amazing judge. I have no doubt you are amazing like your mom and will get through this.

  19. Sally Muncy

    Sending you lots of positive vibes and lifting your name in prayer. We are all behind you, in front of you and on either side of you to shield you as best we can.

  20. Diane

    You are a brave and courageous young woman. With the love and support of your family and friends, and the prayers of so many who care about you, you will win this battle and have a beautiful life.
    Love, Austin’s grandparents 💞

  21. Stacy

    It was nice meeting you this morning at the hospital. You’re with a wonderful team here at the hospital! If you want to follow Waylon, he has a group on Facebook: Warriors for Waylon. Also if you or your parents have anything I can help with, please let me know. I can answer any questions yall might have about the pediatric cancer world..Facebook: Stacy Scott Malone

  22. Aunt Sue

    Jill, I am Sheri’s Aunt Sue…I want you to know you are on the top of my list for prayers..I admire your strength and faith in God and when you have those “low” days let all these prayers lift you up. Hugs for you and your family…

  23. Kathy Rios

    Praying for you daily Jillian! You are a strong woman of faith & I know you will prevail!! Much love , grace & peace coming your way!!

  24. Stephen Mathews, Sr.

    I am Austin’s grandfather and I am greatly impressed with your strength of character. I just want you to know that you will be in our prayers continuously. I look forward to meeting you in the future. May God be with you and give you strength. Much love.

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