Well if y’all are friends with mom on Facebook y’all will know it’s definitely been a rough couple of weeks and that is why I haven’t posted. My plan was to write a post about finally starting my last round of pre surgery chemo but that isn’t going as plan. (Insert sad face).
As y’all know my counts have been awesome but as my doctor said today the chemo is starting to take its tole on my body and bone marrow and just my luck it’s on my round. Last week I picked up a lovely cold and of course it was right when my counts got the lowest they’ve been. Since all that happened at once my body has not been able to recover how it should and then it decide to start running a fever. It is like all of the happened at the “perfect” time…. NOT!
Last Tuesday I decided to call my surgeon because I had not heard anything on surgery. I thought I was getting anxious but that was no where close to the anxiety that grew after I talked to her! I called expecting a surgery date but since it was on my portal I told myself they didn’t. Well I was wrong.. Very wrong (LOL) they had everything set and were actually inputting it while I called!
My surgery date as of now is June 27th, that’s if I get chemo Friday. So Pray Pray Pray! I will go almost the whole week before surgery for meetings with the plastic surgeon, my oncologist at MD Anderson, and Dr. Lewis my orthopedic oncologist. Also that week I’ll have blood work, a MRI, and a chest CT. It’s truly crazy how fast it’s all coming up!
I pray that God continues to heal me and bring my counts up and fever down. It really stinks when there is really nothing at all I can do to make counts come up or a virus go away. Believe me we’ve asked and all that will work is time!
On a different note this summer I wanted to take a family pre surgery trip to Tennessee but with all this crazyness we might not make it as a family. Right now our plan is for mom and I to fly up to Memphis for a couple days and go to Graceland and also visit with 2 other girls I have met on Facebook who also have Ewings Sarcoma and are being treated at St. Jude’s. I hope that it will all still work out because that is one big thing I have decided I’d like to do. (Visit with those who are terminal or fighting the same disease as me. )
With all this being said I would like to thank all of y’all for being paitent with me on posting! It’s of course 11:37 pm and I’m laying in a hospital bed but I finally got enough energy!
One of my post I put my email and if y’all have any questions please don’t hesitate to email me any questions you might have.
Also like to thank my family and friends for being such awesome supporters for me and reminding me that it’s ok to be scared about surgery and 6 more months of chemo but they will all be there to keep me strong and fight with me.
Lastly I’d like y’all to not just pray for me but for any child fighting cancer. It’s a scary thing. Thank God I’m to the age where I can understand just about everything going on but there are young children and babies who have no clue why they have to get a terrible poison pumped into their body that makes them so sick and lose their hair and everything else that comes along with nasty chemo. It’s very hard to explain to a young child that this poison will hopefully heal them because it make NO sense. I also ask you to pray that God helps them and their families get through the terrible time. God as a great plan for each and everyone of us but I feel like those who go through this he has a even greater plan.
I will try to do another update as a get closer to surgery but I ask y’all to bear with me I will do my best.
“Prayer Moves Mountains”
Jillian K ❤️