Oh the Anticipation

Hello everyone!

Well if y’all are friends with mom on Facebook y’all will know it’s definitely been a rough couple of weeks and that is why I haven’t posted. My plan was to write a post about finally starting my last round of pre surgery chemo but that isn’t going as plan. (Insert sad face).

As y’all know my counts have been awesome but as my doctor said today the chemo is starting to take its tole on my body and bone marrow and just my luck it’s on my round. Last week I picked up a lovely cold and of course it was right when my counts got the lowest they’ve been. Since all that happened at once my body has not been able to recover how it should and then it decide to start running a fever.Β It is like all of the happened at the “perfect” time…. NOT!

Last Tuesday I decided to call my surgeon because I had not heard anything on surgery. I thought I was getting anxious but that was no where close to the anxiety that grew after I talked to her! I called expecting a surgery date but since it was on my portal I told myself they didn’t. Well I was wrong.. Very wrong (LOL) they had everything set and were actually inputting it while I called!

My surgery date as of now is June 27th, that’s if I get chemo Friday. So Pray Pray Pray! I will go almost the whole week before surgery for meetings with the plastic surgeon, my oncologist at MD Anderson, and Dr. Lewis my orthopedic oncologist. Also that week I’ll have blood work, a MRI, and a chest CT. It’s truly crazy how fast it’s all coming up!

I pray that God continues to heal me and bring my counts up and fever down. It really stinks when there is really nothing at all I can do to make counts come up or a virus go away. Believe me we’ve asked and all that will work is time!Β 

On a different note this summer I wanted to take a family pre surgery trip to Tennessee but with all this crazyness we might not make it as a family. Right now our plan is for mom and I to fly up to Memphis for a couple days and go to Graceland and also visit with 2 other girls I have met on Facebook who also have Ewings Sarcoma and are being treated at St. Jude’s. I hope that it will all still work out because that is one big thing I have decided I’d like to do. (Visit with those who are terminal or fighting the same disease as me. )

With all this being said I would like to thank all of y’all for being paitent with me on posting! It’s of course 11:37 pm and I’m laying in a hospital bed but I finally got enough energy!

One of my post I put my email and if y’all have any questions please don’t hesitate to email me any questions you might have.

Also like to thank my family and friends for being such awesome supporters for me and reminding me that it’s ok to be scared about surgery and 6 more months of chemo but they will all be there to keep me strong and fight with me.

Lastly I’d like y’all to not just pray for me but for any child fighting cancer. It’s a scary thing. Thank God I’m to the age where I can understand just about everything going on but there are young children and babies who have no clue why they have to get a terrible poison pumped into their body that makes them so sick and lose their hair and everything else that comes along with nasty chemo. It’s very hard to explain to a young child that this poison will hopefully heal them because it make NO sense. I also ask you to pray that God helps them and their families get through the terrible time. God as a great plan for each and everyone of us but I feel like those who go through this he has a even greater plan.

I will try to do another update as a get closer to surgery but I ask y’all to bear with me I will do my best.

Mathew 17:20

“Prayer Moves Mountains”

Much Love,

Jillian K ❀️

 

Fun at Graduation party with these two sweet girls πŸ’œ

Fun at Graduation party with these two sweet girls πŸ’œ

I love these two more than anything in the world. So bless to have such strong and inspiring parents to guide and protect meπŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ (we're missing my brother in this post)

I love these two more than anything in the world. So bless to have such strong and inspiring parents to guide and protect meπŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ (we’re missing my brother in this post)

My new favorite picture of Austin and I! So bless to have this boy on my life πŸ’œ

My new favorite picture of Austin and I! So bless to have this boy on my life πŸ’œ

For those of you who know me WELL know Pinky, but for those of you who have no clue this is Pinky. I have had her since about second grade and she has not missed a night with me! She hold many many tears that's for sure!

For those of you who know me WELL know Pinky, but for those of you who have no clue, this is Pinky. I have had her since about second grade and she has not missed a night with me! She holds many many tears and memories that’s for sure! 🐻

I was blessed with an amazing off shore fishing trip with close family friends! I can't thank them or the Simper Fi Crew! It was amazing🐟

I was blessed with an amazing off shore fishing trip with close family friends! I can’t thank them or the Simper Fi Crew enough! It was amazing🐟

Here Fishy Fishy! 🎣

Here Fishy Fishy! 🎣

Sunday we got to spend the day with Mr. Flint and his amazing family for his Texas 1st Birthday Party. His parents are the ones who helped me with raising sheep and I can't thank God enough for the bond we have grown! Love y'all so much and Happy 1st Birthday Flint! ❀️

Sunday we got to spend the day with Mr. Flint and his amazing family for his Texas 1st Birthday Party. His parents are the ones who helped me with raising sheep and I can’t thank God enough for the bond we have grown! Love y’all so much and Happy 1st Birthday Flint! ❀️

10 Comments

  1. Donna Baker

    Jillian you have so many friends and family praying for you. We will move that mountain with you. Many many prayers.

  2. Kelly Jo Osina

    Jillian,
    You are in my thoughts and prayers daily!! Keep that smile on your face and this too shall pass!! You don’t need to apologize for not posting!! You have a right to rest!! In my prayers I will keep praying for you as well as the children that are fighting cancer. You rest and get better. My prayers will be for the families going through this with their loved ones as well. Your parents are such sweet people. Stay strong in your faith and God will pull you through this sweet Jillian!!

  3. Lois Lister

    Hi Jillian, my name is Lois Lister and I have being praying every day for you, your family and medical team and now all children fighting cancer. I haven’t lived in Sinton long. My husband and I moved from Port Aransas a little over 2 years ago. We built a house west of St. Paul. The reason we moved was to be closer to my daughter, Camille Lister Coates and especially my grankids, Zane and Zoe Coates. You may know Zane, he just graduated from SHS. This is just a little information to let you know who I am. But, who I really am is a follower of Jesus Christ! My joy comes from serving Him, following Him, and trusting Him. I am called to pray for Christ’s precious children. It is my honor to pray for you and your needs. I would love to meet you and visit with you when the time is appropriate. You have given me and I’m sure many more people, courage to face life’s difficult issues. So precious child of God, know that He is very close by to give you comfort and peace. May you feel the loving arms of Jesus envelope you! I pray this in the name of our Lord, Jesus Christ.

  4. David Gray

    Jillian,

    I am the father of a 13 year old girl being treated across the street at Texas Children’s for Ewings Sarcoma. There are some new developments in Ewings treatment in trial you might already be aware of. The Facebook page we keep updates on is called Grace for Gabi. Would love to touch base with your parents as we might learn from one another.

  5. Sandra Hart

    Worrying about keeping the blog up to date—- Nahhhh! it’s on YOUR time that you share. It’s good to have a goal, but keep it real.
    I agree with you about people going through really tough times early in life….All that is for a reason… just like every thing else. God prepares us as we go. I love you sweetie. Keep your head screwed on in the right direction. Anything you need?? Please ask. I would feel so much better if there was something I could do or provide. Including fav foods or driving, etc.
    Keep your head up and your knees down. Love you, Sandra Hart

  6. Kim Boone

    Jillian……yes I agree that God has an even bigger plan for you and it’s already shining through you and your beautiful smile! Your testimony is sooo inspiring and helps keep life in perspective. My prayers are continuous for your family and you. Praying for strength and healing for all who are struggling with cancer, especially those little ones and of course you. Keep the faith and keep your eyes fixed on Jesus and allow him to take care of the rest…..Cancer is not bigger than our Awesome God!! You’ve got this alongside Jesus!!!

  7. Erina

    Jillian
    We all love u and ur strong will to care for others never forget us! Ur sinton pirates we know u can do it and be strong the whole way even if ur hurt u are still smiling inside and out😍😍😍

  8. Jo Norwood

    Jillian, I too have cancer. However, unlike you, I am an old woman!! But, like you, I have had a positive attitude and am now in remission. I am praying for you. Keep your chin up. You are a beautiful young woman and such an inspiration! I may know one of your Sinton High School teachers, Alice Berecka. I was her family’s neighbor when she was a little girl.

Leave a Reply

Your email address will not be published. Required fields are marked *