And just like that.. My life has been changed Forever!

Wow, what a week and a half it has been. Up to this point, I can honestly say this change has been amazing. My family, friends, and I are all adjusting to Little Leni. I have not had any negative thoughts about the decision I made to have rotationplasty surgery.

The first thing I remember after waking from surgery was telling my surgeon, Dr. Lewis, that I loved my new leg.  Many people have asked me if I freaked out the first time I saw Leni and I can honestly say that all I felt was a sense of relief that the cancer is gone.  Knowing that the tumor is no longer in my body makes my heart very happy.

The day after surgery I was doing very well so Physical Therapy came in and allowed me to get up and to sit in a chair.  Well, Leni didn’t like that …  I was put on bed rest for the next day due to intense swelling.  Leni was 70 cm around.  I was downgraded from an ICU patient to regular room on Day 2 and was finally moved from ICU room to a regular room on day 3.

I am pretty sure I had the most visitors at MD Anderson than any other patient during my stay.  I am so Blessed for that and cannot Thank my friends and family enough for coming.   My visitors definitely make time go by a lot faster.  I’ve heard my parents tell everyone that I love visitors and I’m here to tell you that is so true.

God has worked some amazing miracles in my life these past 5 months and I am truly thankful for that.  The anxiety that we all had before surgery quickly subsided when I came out of surgery. It was like a huge weight had been lifted off of our shoulders. Yes, I had many people who supported me on my decision, but I also had people who questioned me and tried to talk me out of having rotationplasty. Now that it is all said and done I am so glad I stuck with what my heart was telling me and went with it.

I know that it might be a little while before I get into a prosthesis but I can not wait until that day comes. Leni and I are ready to start rocking and meeting all the challenges that we will face. I know it will get rough at times but I will NOT give up and will have my family and friends pushing and encouraging me the whole way.

Thank you all so much for being patient with me on my post. I know they are at random times but like I have said before I like to wait until I have something to talk about. I also do not like to ask for prayers for myself but I would like to also thank yall for the prayers and I’d like to ask them to keep coming not just for me but also those who are battling this nasty battle.

My parents and I met several new families while we were in Houston. Some who have been battling for a while and others who have recently been diagnosed. I ask for prayer for comfort, strength, and positivity for these families and children. Thank you in advance.

 

Isaiah 40:30-31

” Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.

 

Much Love,

Jillian K

 

Last picture with my leg!

Last picture with my leg!

My sarcoma sister Demi and her friend Logann. They were such a blessing 💛

My sarcoma sister Demi and her friend Logann. They were such a blessing 💛

PT time 💪🏼

PT time 💪🏼

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Pre-Surgery pics 😊

Pre-Surgery pics 😊

My sweet Bubba ❤️❤️

My sweet Bubba ❤️❤️

Dr. Lewis working on moving Leni

Dr. Lewis working on moving Leni

My rotationplasty girl Jessica! 💪🏼💛

My rotationplasty girl Jessica! 💪🏼💛

The circus came to town😄

The circus came to town😄

Leni and Buc-ee the Beaver

Leni and Buc-ee the Beaver

8 Comments

  1. Cindy Garcia

    You continue to amaze me every day! I am so proud of you and can’t wait for you to come speak to our students about overcoming adversity! Many people let these boulders of despair keep them from continuing their journey! You, my beautiful friend have used these boulders as your stepping stones towards God’s plan!! I am so humbled to say I know this great messenger of God!! And that is what you are a messenger of God to spread faith and belief in His mighty Works! Love and hugs pretty girl our prayers are always with you and your family!

  2. Janie

    You are amazing Jillian. You’re an inspiration to other cancer patients out there.. even though I work for a Cardiologist we still see alot of patients that just found out they have cancer and others that are fighting it .. I have been telling them your story and they all are inspired by it and leave with the mentality that they can fight it too. Thanks for being an inspiration ♡♡ prayers for everyone fighting this battle

    • The whole family is so proud of Jillian we all are better people as we watch Jill beat this cancer with grace and her love of God !!

  3. Kandi Tumlinson and family

    You have continually been in our thoughts and prayers Jillian! We are so blessed to know you and we have faith that you will leap over this hurdle in life with the grace and smile you’re known for. Sending all our love!

  4. Betty Cook

    Our ladies Bible Study group in Rosebud have had you on our prayer list as soon as Suzanne asked it of us. We all rejoiced Monday when I saw your Mom’s post.

  5. J Hunt

    Sweet Jill, I’ve been keeping up with your journey through your mom’s posts. I would like you to know that I am so proud of your faith, bravery, and spunkiness. I really am not surprised with your wonderful attitude because you were such a great kid while we were all together on the hunting lease. You were always one of Jerry’s favorites and I KNOW he would be so proud of you today. I’m sure he was on the angel committee overlooking your surgery and now the recovery phase along with all the other angels who love you. Hang in there, I see a bright and happy future for you and Leni!

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