Childhood Cancer Awareness month through a patients eyes

I feel like I say this in the beginning of all of my post, but it has defiantly gotten hard to find the energy needed for me to blog… also ideas because there is not as much going on like before.

Anyways as many of you know and if you do not know, September is Childhood Cancer Awareness Month. With this being said it has hit a lot closer to home this year. I have always been very intrigued with anyone and anything involving childhood cancer but again nothing like this year. It has actually made me really think about what this month means and what I can do to make a difference in how people perceive it.

Being on social media I see so much and a lot of what I see is people being negative about how childhood cancer is looked at and how under funded it is. I know I am not a parent going through this and I pray multiple times a day that when I am blessed to have kids I will never have to go through anything like this with my kids but I feel like the way some perceive it is the wrong way. Again, this is my opinion as an older patient and all have our own sooo.

I know that not just parents, become angry over the fact of how under funded and under publicized childhood cancer is but if there was just one thing I have taken from this leap (which I have defiantly taken more than I one thing from this) it is, becoming angry at things or situations does not change the outcome. I have learned what changes the outcome is finding a way to make a difference in the situation. Yes, I think it is ridiculous how under funded and under publicized childhood cancer is, but with that I also know that when I finish this leap and have enough energy, my parents and I are going to brain storm about what we want changed and how we can get those changes done.

Another thing is publicity. I am not sure if it is because I am now friends with more people who have been stricken with childhood cancer, or if there are just that much more people who are wanting to help spread awareness; either way I am truly shocked on how many have shared post or have talked about childhood cancer. Yes as far as government funding we only receive 4%, but it takes us to inform all of the other people who have not experienced this first hand to help us get the word out and hopefully receive more.

So my goal for this post is to hopefully encourage parents, patients, friends, family members and anyone else to not be angry, instead sit down and think of a way to make a difference with this. Come up with ideas and research if there is already an organization or foundation that put funds toward your idea and if there is a not I promise your not the only one upset about that topic so then talk about it and find other people who might be in your boat and together maybe you can start something like an organization or foundation to benefit that. Also pray about your topics pray that there is something that can be done and will be done. As a patient I have so many ideas just no energy at this point in my leap, but believe me every time I go for chemo or see my oncologist or child life specialist I through another idea at them.

Lastly an update on Leni! Its been far to long since I have done this but Leni, Larry (I couldn’t leave him out.. LOL) and I are doing amazing. Leni was having some complications healing but after about a month of bugging my plastic surgeon Dr. Adelman we finally got a wound vac put on and we are on the healing tract. I meet with Dr. A and Dr. Lewis the 27th and 28th of this month and I am praying extra hard that after I meet with Lewis my bone will be healed enough to get fitted for my prosthetic. These past couple of weeks have been rough because I am so ready to be independent and as crazy as this sounds be able to go to the restroom without have to get in my wheel chair or on crutches to get there. It is defiantly things like that that make this really real. But like I said in the beginning all is going well I told mom today I don’t feel bad but I defiantly don’t feel good.

I hope I haven’t run any one off because I haven’t posted in forever but thank you so much for being patient and understanding.

James 1:19-20

“Understand this, my dear brothers and sisters: You must all be quick to listen, slow to speak and slow to get angry. Human anger does not produce the righteousness God desires.”

 

With Much Love,

Jillian K

 

One Comment

  1. Hollis Uecker

    Blessings to you! So proud of your thought provoking blog! You have made a difference in so many lives! I know Larry, and Leni, will be leaping very soon. Stay Jillian Strong! Keep running the race, the finish line is so near.

    But those who trust in the LORD will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint. (Isaiah 40:31 NIV)

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