Oh 2016; What a Year you have Been!

2016, There are so many things I could say to you and HATE you for, but my thankfulness trumps ALL of that!

I’ve got to say this year is one I will NEVER forget! Not only has cancer changed my life but it has blessed me BEYOND measure! It has taught me that no matter what life hands you make the best of it.

February 29,2016

Around 10:45 am, my life changed forever. As I  woke up from my biopsy I was told that I have cancer. They weren’t sure if it was Ewings Sarcoma or Lymphoma. Yes, mine and my family’s life went into a fog. The fear of the unknown began. We knew God had a plan but at that time what was his plan? What would tomorrow bring?

My first questions that day were; Am I going to lose my hair, would I be able to have my own kids and am I going to lose my leg? As crazy as this is –  bone cancer was something I was so familiar with! My high school volleyball coach brought an amazing young man who was battleing Osteosarcoma, named James Ragan, into our teams lives my sophomore year of high school. I immediately went home to tell my parents his story and we prayed for him every night. I researched everything there was about Osteosarcoma but not once did I come across Ewings. My diagnosis was literally a complete shock.

March 25, 2016

Easter weekend for most families is about church, hunting Easter eggs, and celebrating our Savors ultimate gift to us, but my family and I were celebrating this special time with me in the hospital starting the worst drugs of my life. When people say chemo is terrible they are not kidding. I have tried to handle this with such grace publicly but, in all reality it has been hard. There are days that are absolutely terrible and I feel horrible, but I know that for me to get better and with my personality I have to get up and get going. Trust in the Lord and His plan whole heartily.

May 28, 2016

This is the day I made the best decision of my life. I confirmed with Dr. Valerae Lewis that I wanted to have rotationplasty. From the moment I walked out of her office in March, I knew that this is what God had planned for me. I was at peace and so ready for this life changing event. I could tell this was a shock for the family and friends but again I knew exactly this is what God had planned for me!

July 7, 2016 (7,7, 1+6=7)

LENI’S BIRTHDAY!!!!!!!! This day will forever be one of my favorites. Most people would see this as a terrible thing, but for me if was AMAZING! I feel like this is the life God has always had in mind for me. I have always wanted to spread awareness and what better way. It’s the life I am living and I am LOVING every single moment of it.

December 19, 2016

Another life changing and amazing day! I took my first steps in my prosthetic! It was only 30% of my weight but is was 30% more than I have gotten to do in the last 5 months! There were so many emotions in that room that day, and it was incredible!

I still have lots of bone healing left so lots and lots a prayer is still needed qfor that!

Now to 2017!

Lets do this!

I am going to LEAP through this year like never before! I get to start 2017 with a new leg and get to ring the bell for my last chemo! I have a strange feeling that God has huge plans for this year! I have set some goals that I am praying to meet!

1. Try out for our USA Paralympic Sitting Volleyball Team. 2. Start public speaking and spreading awareness about Ewings Sarcoma and Childhood Cancer. 3. Go back to the best college ever, Texas Lutheran University 4. Learn to ski and snowboard.

I am sure more will come as I tackle this year but for now those are my main ones!

Lastly, I want to thank all of y’all reading this for following my leap through this nasty yet amazing thing called cancer! I know I have been very inconsistent on blogging lately and I’m sorry for that. It has been rough lately and I haven’t had much change that I could share. I tell my doctors that I’m a pretty boring patient now but THANK GOD, I wouldn’t want it any other way!

I would also like to ask y’all to pray for those who will be  diagnosed any type of cancer in 2017. It is a scary time but with prayer and the good Lord all things are possible!

I have come up with my life quote and I feel like it couldn’t be more true!

I Want To  Make A DIFFERENCE By Being DIFFERENT!

God has made me different for a reason and I’m going to make a difference with that!

Thank you all so much again and I pray that each and everyone of you have a blessed 2017!

 

Jeramiah 29:11

“For I know the plans I have for you declares the LORD, “plans to prospert you and not to harm you, plans to give you hope and a future.”

 

With Much Love,

Jillian K

 

Leni Being Casted!

Merry Christmas and Happy New Year from Oli and I

Such a beautiful gift, Ms. Sweet Adlyn

Standing on Leni for the first time ! 

The best boy friend there is ❤ Mr. Flint

 

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